08 8375 2000

Down Syndrome SA

Two brothers walking and laughing together

Support, Programs & Community Connections

Down Syndrome SA (DSSA) is dedicated to empowering children, teenagers, and adults with Down syndrome through inclusive programs, social opportunities, and family support services across South Australia. We offer playgroups, peer connection events, social activities, and reliable information to help people with Down syndrome—and the people who love and support them—thrive.
 
Our programs and services are designed to foster inclusion, promote independence, and create opportunities for every person with Down syndrome to feel seen, heard, and supported.
 
Whether you’re a new parent seeking guidance, a sibling looking to connect, or an adult ready to join new activities, DSSA is here for you. We’re a community built on belonging, where every milestone—big or small—is recognised and celebrated.

About Down Syndrome

Down syndrome is a genetic condition that occurs when a person is born with an extra copy of chromosome 21. This additional genetic material can influence a person’s physical characteristics, development, and learning abilities. However, every individual with Down syndrome is unique, with their own personality, interests, talents, and pace of development.

Down syndrome is a genetic condition that occurs when a person is born with an extra copy of chromosome 21. This can happen in one of three forms: Trisomy 21 (the most common, where every cell has an extra chromosome), Translocation (where part of chromosome 21 attaches to another chromosome), or Mosaic (where only some cells have the extra chromosome). This additional genetic material can influence a person’s physical characteristics, development, and learning abilities. However, every individual with Down syndrome is unique, with their own personality, interests, talents, and pace of development.

Understanding Down Syndrome

  • It occurs in about 1 in 1,100 live births in Australia.
  • It is not an illness or disease.
  • People with Down syndrome can live long, healthy, and fulfilling lives.
  • Early intervention, inclusive education, strong social networks, and community support play a vital role in helping individuals with Down syndrome reach their full potential.

Most people with Down syndrome have developmental delays and may experience health issues, but these can be different for each person. With the right support, they can lead meaningful lives—going to school, working, building relationships, and living independently or with some help.

Our Commitment

At DSSA, we focus on what people with Down syndrome can do. We celebrate abilities, nurture independence, and walk alongside families as their children grow into confident, connected individuals.

DSSA is here to help families and individuals with Down syndrome navigate the journey with confidence, connection, and community.

Explore our programs

Inclusive Social Programs and Events

Find fun, friendship, and purpose with our Social Connections activities—designed to help teens and adults with Down syndrome feel included and confident.

Join Social Connections

Down Syndrome Resources for Families

Access trusted Down syndrome information, NDIS guidance, and recommended websites for parents, carers, and extended family members.

View Information and Resources

Contact DSSA

Contact us on 8375 2001 or [email protected], join our mailing list or follow us on Facebook or Instagram.

DSSA Logo

Social Programs for People with Down Syndrome – Make Friends and Have Fun with DSSA

DSSA’s Social Connections program creates opportunities for people with Down syndrome to have fun, make friends, and enjoy meaningful experiences. Our inclusive activities promote independence, confidence, and connection for all ages.

Our Social Connections program offers fun, inclusive, and meaningful activities for children, teens, and adults with Down syndrome. It’s all about creating social opportunities, developing life skills, and boosting confidence in safe, supported environments.

Social Nights

Regular get-togethers where individuals can enjoy a fun night out. It’s all about having a good time, making friends, and enjoying shared interests in a safe, inclusive space.

  • Movie nights, karaoke, trivia, and themed parties
  • Safe and supported environments to socialise
  • Events run by friendly staff and volunteers

Penpal Program

Our Penpal Program gives individuals the chance to make a new friend through the simple joy of letter-writing. Participants are thoughtfully matched based on interests, and friendships often blossom as they exchange stories, drawings, and life updates. It’s a great way for adults to:

  • Boost confidence in communication.
  • Build friendships and meaningful connections through letter-writing with someone who shares your interests.
  • Enjoy old-school fun!

Children’s Camp

Our Children’s Camp are an exciting, fully supported overnight adventure for children with disability. With fun activities such as games, nature walks, crafts, and campfires, it’s a wonderful opportunity for children to experience independence, learn new skills, and form friendships in a fun and caring environment.

  • Overnight adventures filled with creativity and nature
  • A supported overnight adventure full of outdoor fun, creativity, and connection
  • Led by trained staff with a focus on inclusion and independence

Orana Community Options

We connect individuals to Orana’s Community Options Programs, which offer even more ways to get involved and discover new passions. Activities include:

  • Music, dance, and drama
  • Visual arts and creative projects
  • Cooking and life skills
  • Gardening, fitness, and nature-based adventures

These programs are flexible, inclusive, and designed to match individual interests and goals, whether someone wants to learn something new or spend time with others.

All activities are run by friendly, experienced staff who prioritise inclusion, safety, and fun.

Want to know what’s on this month? Join our mailing list or follow us on Facebook or Instagram for updates.

In Their Own Words: Living Life with Down Syndrome

Created in close partnership with the Down syndrome community, this inspiring and powerful new video series shares the authentic voices and stories of people with Down syndrome.

Meet Felix, James, Rachel, and Bella – four individuals breaking down stereotypes and showing what life with Down syndrome really looks like: creative, independent, and full of purpose.

Each story celebrates the diverse experiences of people with Down syndrome in education, employment, business, and the arts, showcasing individuality, talent, and the many ways these individuals contribute, achieve, and thrive in their communities.

Watch the videos below to hear their inspiring stories and gain a deeper understanding of Down syndrome through lived experience.

Meet the People Changing Perceptions

Mother in and son walk hand in hand in a park while son holds a football

Where to Find Information and Support for Down Syndrome in SA

We understand that accessing the right information is vital for families. That’s why we’ve created a list of trusted resources to help you learn more about Down syndrome, connect with services, and make informed decisions.

National and State Organisations

  • Down Syndrome Australia
    The national peak body representing people with Down syndrome. Offers factsheets, advocacy tools, and family resources.
    www.downsyndrome.org.au
  • Carers SA
    Offers local support for family carers including counselling, respite info, and peer support.
    www.carerssa.com.au

International Organisations

  • Down Syndrome International
    A global network of people with Down syndrome and their families. 
    ds-int.org/
  • Down Syndrome Education International (UK based)
    United Kingdom based education and information service.
    www.down-syndrome.org/en-gb/
  • Down Syndrome Resource Foundation (Canada Based)
    A Canadian based service that provides educational programs, health services, information resources, and rich social connections
    www.dsrf.org/
  • National Down Syndrome Society (USA base)
    NDSS is a United States of America organisation that empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.
    ndss.org/

NDIS and Disability Support

  • NDIS (National Disability Insurance Scheme)
    Learn how to access the NDIS, understand eligibility, and prepare for planning meetings.
    www.ndis.gov.au
  • The Growing Space
    Independent, family-friendly NDIS information and coaching. Great for parents who want clear advice.
    www.thegrowingspace.com.au
  • Disability Gateway
    Australian government portal connecting people with disability to services across health, education, transport, and employment.
    www.disabilitygateway.gov.au
  • South Australia Council on Intellectual Disability
    SACID is the South Australian representative of Inclusion Australia. 
    www.sacis.org.au

Early Childhood Development and Therapy

  • Raising Children Network
    Expert parenting advice with a dedicated section for parents of children with disability.
    www.raisingchildren.net.au
  • Kindship
    A free social networking app for parents of children with disability. Great for peer connection and crowd-sourced tips.
    www.kindship.com.au
  • First Steps for Families (SA)
    South Australian guide for families new to disability diagnosis and early childhood intervention.
    www.education.sa.gov.au > Search “First Steps Disability”
  • CaFHS
    The Child and Family Health Service provides free support for all children from birth to 5 years, living in South Australia.
    www.cafhs.sa.gov.au
  • Playgroups SA
    A non-profit, community organisation that connects mums, dads, grandparents and caregivers with playgroups for young children to help them develop, grow and have fun across South Australia.
    www.playgroupsa.com.au/

School and Learning Resources

  • AllPlay Learn (Monash University)
    Free teacher resources to support inclusive education for children with disability.
    www.allplaylearn.org.au
  • Key Word Sign Australia
    Provides resources and training on the Key Word Sign tools that  can be used to support children and adults with communication difficulties to understand and get their message across to others.
    kwsa.org.au/
  • Two Way Street
    Adelaide company focusing on AAC communication and offers training to business’s and schools on using AAC/also support families on NDIS.
    twowaystreet.com.au/

Health and Wellbeing

  • Down Syndrome Clinic 2 U (DSC2U)
    USA based online tool to develop personalised medical plans to take to GP to discuss person with DS needs.
    www.dsc2u.org/

Teen and Adult Life

  • Tell It Like It Is: Self-Advocacy Toolkit
    A practical guide for teenagers and adults with Down syndrome to express their choices, rights, and goals.
    www.downsyndrome.org.au/resources
  • Our Site (by Women With Disabilities Australia)
    Resources and stories for young women with disability about relationships, rights, and safety.
    www.oursite.wwda.org.au
  • Special Olympics Australia – SA
    Special Olympics Australia is part of a global movement using the power of sport to build a more inclusive world for people with intellectual disability and/or autism.
    www.specialolympics.com.au/find-a-sport-near-me/sa
  • Planet Puberty
    NSW developed resource to teach puberty and relationships to people with an ID and Autism.
    www.planetpuberty.org.au/

Down Syndrome and Ageing

  • Babies with Down Syndrome: A New Parent’s Guide by Susan Skallerup
  • Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives edited by Kathryn Soper
  • Supporting Positive Behaviour in Children and Teens with Down Syndrome by David Stein
  • Down Syndrome Parenting 101 by Natalie Hale
  • The Down Syndrome Transition Handbook by Jo Ann Simons

Down Syndrome Transition Handbook – A guide for families preparing for adult life, employment, and independent living.

A woman in a blue top poses with a teapot and loose leaf tea in a bag.

Celebrating Entrepreneurs with Down Syndrome in South Australia

Across South Australia, individuals with Down syndrome are building bold, creative, and thriving businesses, each one as unique as the person behind it. This page lists some of the incredible SA entrepreneurs who are turning passion into enterprise and making their mark on their communities. Head to their pages to explore their stories, support their work, and be inspired by what’s possible when talent and opportunity come together.

King’s Games

Giant lawn games available for hire for parties, weddings and other events. Based in the Barossa Valley and owned by local James White.

Learn more here.

Magnolia Tea House

Handcrafted loose leaf tea’s from the Adelaide Hills. Personally created and owned by Bella Kobayashi.

Learn more here.

For more information, call us on (08) 8375 2000 or complete our online enquiry form.

Let's keep in touch

Subscribe to our Newsletter

Subscribe to our newsletter and be the first to receive updates, valuable insights, useful information about the NDIS and exciting news about what’s happening at Orana straight to your inbox. By signing up, you consent to receive emails from Orana. You can unsubscribe at any time by clicking the link in our emails. For more details on how we handle your data, please review our Privacy Policy.

Contact us