Stay in touch with Orana Winter 2017
Oranability moving to digital
Our newsletter Oranability will transitioning from a printed to a digital version in June 2018.
NDIS lingo explained…With the NDIS set to rollout in South Australia for adults with disability from 1st July, Orana has been providing information to people we support, families and carers in the first transition areas to ensure everyone is NDIS ready.
Orana is looking for dedicated volunteers to join our very friendly Communications, Fundraising and Op Shop team.
email or 8375 2000
SAVE THE DATE
-ORANA EVENTS 2017-
Friday 13th October
Orana put some joy back in our lives
Nick and Ev were delighted, when after many years of trying, they were finally having the baby they had hoped for. “It will be a little girl,” they were told during the ultrasound. So, you can imagine their surprise when they had a beautiful baby boy. Unfortunately this was not the last time they would receive an incorrect diagnosis or assessment for their treasured son Ben.
As a baby, Ben suffered infantile spasms but he was misdiagnosed with reflux. Understandably Ben’s parents, Nick and Ev were beside themselves with worry. After Ben’s third ambulance trip to emergency, a nurse witnessed one of Ben’s seizures and reported it to the doctors. But this was only the start of a challenging journey for Ben and his parents.
Prior to starting at the local state primary school, Ben was misdiagnosed again. His parents were told he had a language learning disorder. But, Nick and Ev knew Ben had greater challenges. They took him to an independent assessor who tested Ben and he was diagnosed with Autism, ADHD, obsessive compulsive disorder and an intellectual disability.
With Ben attending Errington Special School, Nick unable to work and no family to offer them any support, Nick and Ev struggled to meet the day to day challenges of caring for a child living with disability.
Just under a year ago, fifteen year old Ben and his parents approached Orana to provide respite and life skills support.
Ben, like any other fifteen year old boy, has dreams and goals: increasing his social life, experiencing new things, getting his driver’s licence, and to live independently.
Ben’s father Nick has dreams for his son too. “As I’ve just turned sixty I worry about Ben’s future. I want to know he has the skills to take care of himself. To be his own man. That would give me peace of mind.”
After working with Orana to develop a respite and life skills support package, Ben spent his first independent weekend away from home. With his Client Coach Kim, Ben stays at Orana’s Galway Apartments one weekend a month. Together Kim and Ben are building the foundations to make his dreams a reality.
During the day Ben has been learning to catch the bus, read bus timetables, plan days out and improve his interaction skills when out and about in the community. Ben has been building the skills that will enable him to ‘be his own man’ in the future. Ben has been learning to take care of himself.
“He gets to learn everyday things like cooking, washing dishes, making his bed, helping Kim clean up, putting his bedding away and just getting everyday, hands on skills that people generally take for granted,” says Ben’s dad Nick.
“I love Ben so much and it’s terrific to see him grow as well as learning new skills and it’s a real joy to all of us and we can’t thank Orana enough for that. They’re the only ones that have really helped us hands on and really broadened his outlook on life.”
The daily demands of caring for a child living with disability can take all of a parents energy and focus. Respite helps to break the cycle.
“We’ve got no support other than Orana, they’ve been a godsend for us. Actual hands on help, made a difference to our little family and put some joy back in our lives.”